I took some time off for health reasons. Everything is going as planned with the website. It is up and running, no release date has been confirmed because of on-going issues.
Hey all. It's been a while since I've updated. I actually have been still around fixing up the rest of the site but not much writing. I honestly don't even know what to say?
I started fibroplex. Vitamins to control fibromyalgia and I find they work really well. Though do have some side effects of stomach pain and exhaustion.
Training isn't going so well...but still better then I last left off.
I also feel very overwhelmed and over worked. I have no idea why. I just have so much to do and no time to do any of it.
Also. This week I will be calling a rheumatologist to make an appointment to further investigate all the pain. Also will have to make an eye appointment (can't see far,) and I will make an appointment with my surgeon to see what we can do after getting the MRI results.
I will keep you all posted xoxox
Today I have had an off day. One of the days where every single...(or what feels like every single) fibro symptom in the book hits.
My entire body is in pain even my fingers (hence why I think this will be a short post). It feels achy and crackable (but does not want to crack). My spine and shoulders and arms and fingers hurt the most. Which is kind of funny because normally it is the other way around. Usually it is my lower body that hurts and my upper that is fine.
Also there is numbness in my arms and fingers. I am having headaches and I am dehydrated. I have been peeing every 30 minutes (on the dot) today...and yet I barely drank anything. But it was not a full amount just a bit here and there so tomorrow I will be trying my pills again.
Exhaustion level is almost at the max. I have been bed ridden for two days so not sure how it can be this low? But tomorrow I did promise myself to gym and skate even if its both 20 mins at a time.
Fibro fog has definitely been hitting me today. Especially now as I am trying to write this.
Swelling 50+ inches and cravings are also big today. Tried cutting down on the cravings and it worked better then I expected. Tomorrow I am aiming for better.
So yes today is a full blown Fibro day...and slight Endo day. and for all of you who don't understand fibro...the picture will help you out. Good Night xoxo
I don't know what to say right now. My thoughts are all over the place. But I am in a bad mental place right now. I'm having trouble with my body image. Now because I think I'm fat but because...well I know so. I was on pace of losing ten pounds this month. But I've been getting cravings for junk food. Like I've had cravings before but this I just want to stuff my head in chocolate cake and eat it all.
As you all know. I suffer from a binge eating disorder. And was almost a month free of binging. But every day it is getting harder and harder to control.
Today, I'm not sure what triggered it but I was out of control. I couldn't even write down what I ate because I don't even know?!
I know one things for sure I enjoyed some Starbucks and Tims splurges. Coffee!! My main addiction and I think that's because I am in school and I am still studying.
Today...I want to be skinny. Like super thin. For those who are fellow quebecers I want to look like Maripier Morin. For the rest of you. Google her 😏
I want a body I can show off. One that's not in any pain...or less then I'm used too. One that can get through a day where I don't collapse. One that if I show up at the rink I don't cry before knowing what'll happen. Get where I'm heading at?
Another part that could have been a main trigger is today I wore sweat pants all day instead of my leggings. I feel more secure of myself in leggings because I am able to control what I eat so I don't pity myself in what I look like. In sweat pants it's all or nothing and it's like I have no control. What is the reason you may ask on why I tried this today even if I knew??
I had an exam today and felt like a slob in the morning. I woke up and the first thing I did was look in the mirror and judge myself. i didn't like my face, my hair, I was fat, I had saggy breasts, stretch marks, uneven lips. Like the criticism kept coming.
Another trigger that I think caused this is my stomach. It hasn't gone down in SEVERAL days!! It's been reaching from 50-75 inches everyday and no matter what I try to do it gets in my way and this causes frustration.
A part of me wishes I could snap my fingers and be thin. I've tried diets etc and they work to an extent.
But what I did learn this week is endometriosis causes swelling like what I'm getting. So we will see what the MRI shows and if that's the reason.
For now I am fighting off the urge to starve myself. Last time I ended up doing that the weight dropped a lot but everything else flared up and took weeks to go down.
Constant mind battles 😕
Okay. So I cannot exactly say what is happening anymore. I don't even know myself....it's been a week of medical appointments and I still don't have many results.
This morning I had ANOTHER MRI done. My third one in........9 months?? This one was of my pelvic/stomach area.
If you all recall, I had surgery in April. The surgery did not work and I had no results. Doctor said I was one in a million cases and his first.
Soooooo the MRI was done to see which way to go next. I saw a few of the images but I don't know how to read mris so I don't want to make assumptions.
The worst part about MRI's is the stress. I wasn't allowed to eat or drink. They had to put liquid dye in me to light me up. The whole process lasted about 1 hour and the entire time I was almost fully sleeping.
Now I'm waiting to see my chiropractor.
It has been a long week...But I survived? I think.
So lets sum up some of the details. I have been getting extreme back flares and the past two months have been the worst (even though it has been on and off for years). So I finally realized when it started to paralyze at night and I was unable to get up to pee, that there was a problem.
I sucked it up and made appointments with an acupuncturist and a chiropractor. Both appointments were new and I was nervous.
Acupuncture was on Wednesday. It went smooth. The first part I was lying on my back there were needles in my belly, feet and hands. Those fifteen minutes I have to admit were long. My back was seizing up and for some reason I was restless. I think because I was new to acupuncture I had no idea what I was going in for.
It seemed to have helped. But it did leave some bruises all around my body. BY THE WAY----IT DOES NOT HURT!!! JUST DONT LOOK AT THE NEEDLES.
For the chiropractor. I drove 30 minutes to see one. He evaluated me and determined I have a Sacroiliac Joint injury. I am still waiting for a full idea of what I have to do but it is a start.
We started treatment already. It should take about 4-6 weeks minimum but could take longer.
I have to admit the pressure hurt the most and the movement also. But after it was done I felt a lot better.
However, the day after everything keeps cracking but doesn't hurt. I had a fabulous sleep for once. Though the downside my neck and shoulders hurt A LOT!!! I don't know why, but I will find out on Wednesday when I go back.
I have some more updates, but for now...Good Night!! xox
I've reached 77 inches tonight with this flareup. A new personal record...one I wish not to keep breaking
Heyyyy love bugs. Been a few days since I've posted. I've been focusing more on other areas around the site. But I feel like now is a good blog update. Ready?
Well for one. I saw my surgeon on Wednesday. And news wasn't as bad as I expected....but I was hoping for wayyyyyyyyy better.
I went into surgery on April 16th, 2015. And I was told to come back to see him a month later. Well the time rolled around and I went in to the clinic.
It started off with some questions and answers. Then the news came and we found out something went wrong.
My heart skipped 100 beats in the timeframe.
When he was using the gas to expand my abdomen so he could search my body refused to expand. He tried several times for over half an hour and still it would not happen. So he had to give up. He didn't end up seeing anything and we are still left with lots of pain and no answers.
Apparently this rarely happens. And my case is one of a million. And his first. As he's never seen this.
So what's next for this ongoing battle??
I have an MRI scheduled for June 17th (private health care or it'd be months longer). MRI consists of iodine...and from there we will go.
This is a picture I've stumbled upon today...I have no idea why, but it speaks so much to me. It's a girl trying to make herself look like a model.
I've tried for years. I've done crazy diets, starved myself and so much more damage...when in reality I should love myself for who I am and try and stay healthy.
Yet there is a part of me upon seeing this picture that gives me a sick feeling of wanting to do something dangerous to be skinny.
Yesterday I went to see the urologist. I had a cystoscopy done to check the inside of the bladder. This is where they take a flexible tube and stuff it up your vagina into the urinary tract system and then release liquid as it fills up your bladder.
By far it was the most painful thing I have ever encountered...and I have been through many doctors tests.
The test took no more then 8 minutes...even if it felt like I was there hours. After the test I saw the doctor. He said there is nothing abnormal...and I was given meds for the infections and meds to slow down my bladder and kidneys from having me need to pee every 30 minutes/an hour (most of the time my bladder was not even full).
I left the place and drove to the arena. I think I was in more shock then anything. I got to the rink and automatically had to pee...well wasn't urine, it was still the liquid they put into my bladder.
After that, within the hour I had to go three more times and that felt like I was peeing razor blades. It was getting worse...but drinking liters of water did help. I even bought the antibiotics to help and now, the day after it worked.
Woke up this morning...had a mental breakdown within 5 minutes of being awake. After stood up, walked to the bathroom and threw up for about 10 minutes. It was all bile and tasted like sugar. I could not even drink water from the taste.
Instantly I knew what I was in for. I got dressed and went to a clinic, to see a doctor I am comfortable seeing. I told her that my stomach was burning, felt acid in my stomach and all the way to my mouth. She felt my stomach and pressed on it and more acid was coming up.
Right then, I was diagnosed with stomach ulcers. These were caught early...ONLY because I have had them two other times. All three times were in an 18 month span.
She gave me pills to take, every day for a month and after if it does not help I have to go back and see her.
How did I get them: Pain killers. Simple as that. I was overdosing on pain killers which caused acid and burning in the lining.
Blue pills I took about 10-15 per day. White Pills I took 1-2 a day (Max)
And while the 15 pills isn't normal....I should have taken more of the white and less of the blue.
To learn more about Stomach Ulcers, please go to the list of illnesses.
Even with chronic illnesses. I try to balance out full time school with skating and coaching...even if it is too much. & this semester I got my highest marks/average....in UNIVERSITY
I had an English class...it was writing and making a portfolio. && I got a B+ on the class. I did miss quite a few classes because of the fibro flares but I lost some marks with online stuff....
Political Science Class....even though I didn't do much studying. I loved the teacher. I did the essay/Mid term and final exam and the final exam must've been really good to get me that mark.
Health and Sports class...was really fun and I took it more for personal reason.
Anthropology was my worst class. It was hard to keep up and understand but I tried my best.
All my classes are passed. Which means my semester is passed.
I did all this with 1000 doctors appointments, coaching, finding a job etc!
To my peeps suffering, don't give up. Live the best you can. You only have one life. Control your body and don't let it control you❤️
Wow!!! First apologies to the previous post. It looks like a two year old wrote it. Problems with midnight-weeping wanting to kill someone fest...while writing on an iPhone and not doing spell check.... (I will get around to editing it)
The Endo pain has been terrible for me. This marks day 4 of extreme pain/ my first period since the surgery.
Just an hour ago I was curled up on the bathroom floor gripping my stomach! It felt like my uterus is being ripped out and carving and making me want to puke and faint all at once.
I've had this pain before, hence the reason I had the surgery but NEVER this bad. And not sure why? Is it healing or is the endo still there or is it worse?
Today's pain has been the worst of the past few days. I feel like it is progressively getting worse over time. I still want to see what the doctor says.
I've taken more pain meds in the past three days then I took when I had surgery. Not normal!! I've also almost finished a bottle of 60 pills!!??? Yeah something needs to be fixed here
Dear self and hopefully people who will understand me:
I cannot explain how I feel or what I feel...but I feel like tonight I need to write this. Why? I don't know. Will I ever know? Probably not.
I am tired of not knowing things. I am laying in bed crying my eyes out for....the fifth day in a row?!! Or I don't know past 3 months?
I feel like I am trapped. Everything brings tears in me. I thought getting a job and keeping busy would help. In fact maybe it did for a bit but I need help.
I am embarrassed to ask anyone for help. I feel shame that my mentality is not the same as the rest of my family. I'm sad morning and night. My dad thinks I hate him. I don't. I just don't know how to deal with myself and I feel like isolating myself I won't hurt anyone. But I do I keep hurting the people I love and who love me.
My parents always said mental illness didn't exist and they had me brainwashed on that. But I know it exists and I can't hide it anymore. I've continuously asked them for help especially since I woke up from my surgery and they shrug it off saying I don't need to see anyone.
I'm sorry but the fact I can't stop crying. Hate everyone. Hate myself more. Having breakdowns over the stupidest things. Anger so raged I've thrown many things at the wall. I need it. I really do. How can I ask them to help me without another shrug?
The pain I'm in is real. When things get to much I pop pain meds. Same pain meds that give me stomach ulcers but they give me a form of relief or put me to sleep for hours.
I can't continue living like this. I really need help.
I have no idea where the depression has come from? But the doctors appointments for the past...7 years? Has not helped. The past 8 months alone I've had:
1 breast exam
5 blood tests
9 urine tests...
I've seen so many doctors and specialists. I'm tired of it. I want to stop and live a life.
I am in constant pain 24/7 from the fibromyalgia. Everyone thinks I am a normal human who can get up and do 18 hour days. But what they don't realize is after 3 hours I want to curl up in bed and cry.
Fibro is something my parents don't understand or try to understand. They don't realize I am in pain 24/7. They think I can go to school full time, work, skate, coach all because I am "young". I suffer chronic exhaustion because of the fibro and endo. I want to sleep all day at times but I force myself out of bed. For once I just wish they would open google and search the illnesses I have and maybe try to understand them especially before judging me and getting mad.
My parents also wonder why I'm never home half the time. I feel more "able to do things" if I am away from home. Staying at home makes my body think it's done for the day. Even if I am just out sitting at a rink it helps.
For a part of my family. It's always about them....always!! They say they love me but I get criticized every time I wear something they don't like. So what if I like leggings and sweaters and tank tops? I am not a girlie girl I am an athlete.
I haven't lost the amount of weight I've wanted to! Even with help. I have two diseases that make it hard. I try my best but again they criticize me on a daily basis. It's at the point I am going to save money to pay for my nutritionist so I am no longer a burden to them.
I wish they would take the time to realize what I have. And to stop putting me down all the time. It doesn't help. And then they wonder why I am never smiling.
And seriously? Why are they always right? they are never right. And stop bringing up my aunt. She has IBS that triggers when she has Indian food....okayyyy whatever. I suffer a lot more with other issues and do they even bother to ask how I feel every once in a while. Lately everytime I call I get lectured. So what's the point? If I cut them out at least I can take time to myself. But if I cut them out I still get yelled at and lectured at for ignoring them.
Sometimes I need time alone to recharge my batteries before going through this shit.
Arenas and skating. Yes I have issues but I still skate. Why? I love the sport and would be nothing without it. My arena friends, coaches fellow skaters (most of them) are my family. I need them to keep going.
Though, none realize how bad I've been feeling lately. I'm always able to take the pain away temporarily when on the ice. But if it's a bad day then I feel like a useless piece of shit who cannot do anything right.
My coach (of 10 months) has taken the time to understand the issues I'm dealing with. How to help me on and off the ice. Has my book about fibro to gain more knowledge. He has saved me several times in the past year (probably none he's known about) and at least I know I can talk to him whenever, break down and be understood. He's like a big brother that I have never had and one I will always need.
Ask any family member. They won't even know the definition of any disease. One family member thinks fibro is a leg condition. One thinks endo will be cured with a baby. One thinks nothing is there and it's all psychological even though doctors have proven I do have it with tests.
Learnnnnn these issues or stop making assumptions. You don't live with these AND ARE LUCKY YOU DONT and I'm trying really hard to do the best I can. I need understanding if some days I'm not as perky or talkative as others. I need understanding if something isn't done right away. I need understanding if you have to ask me several times. I have fibro fog I become very forgetful
That then leads to loops and viscous cycles.
I'm tired of hurting. Tired of this depression that comes with these diseases. I don't want sympathy. I want understanding. I wish my family would stop criticizing me. I wish they would stop making assumptions about things they don't know. And all in all, I wish they will help me before things get uncontrollable.
I love my family. I love my friend. I love my life (everything in it), I love my skating life. I love working out, I love my animals, I love everything but I need help! Please😔
Okay....for some reason I hate titles?? And beginnings ....Just not good at them. Anyways summer is finally here and ironically my body is starting to feel slightly better. Not so much Fibro pain...but some say weather and cold triggers it, and I am beginning to think that is a possibility.
I pulled my stitches out two weeks after the surgery. (No doctors required) They were driving me INSANE. So I ripped them out. It did not hurt.
I saw my cardiologist last week. I had open heart surgery when I was four years old. They said everything is good but I have to lose weight and be healthier for the next time I see them. OHHH and in three years I get another heard MRI ....Woooohoooooo -____-
Today is Tuesday April 21st. It is my first day out of the house (fully and able to drive) since having surgery...5 days ago. I originally said I would be up and running the day after the surgery. And I probably could have been except I was exhausted. The anesthesia kicked my ass for several days plus the pain killers.
So day 1 of recovery: I spent most of it in bed watching TV. It was hurting to sit down but I was able to lie down comfortably with no pain and stand up/walk with no pain. I took several pain medication that night for shoulder pain. I am telling you I had stomach surgery and was on pain meds for shoulder? Even when I woke up in the recovery room I thought they did shoulder surgery accidentally. But I did read later on, it is the gas they used to separate my organs and see that caused the pain.
As well I had a lot of family and friends calling me and coming over throughout the day. I even left my front door opened so people would come in and I would not have to walk up and down the stairs too many times. But it felt comforting knowing there were people there.
Day 1 I was even able to take a shower by myself and that even felt good.
Day 2&3...over the weekend it went well. Nothing serious happened and I spent a good portion of it sleeping and taking pain meds for my shoulder.
Only problem with those pain meds was the post-op depression. I felt so alone and depressed since I woke up in the operation that I can't even explain how I felt. I did not feel like killing myself but I felt just sad in general. It was definitely the pain meds that were doing it in general. It was the side effects...and now it has been 24 hours since I have last taken one and I have felt a lot better.
Day 4 of recovery I went to IGA for my first outing. I went with my mom. It felt long, but honestly it always feels long. I hate shopping in general that's why it felt long.
Day 5 of recovery is better. Been 24 hours no pain meds. I feel normal, maybe a little more tired then usual. I was able to drive today. Have not gone far but it felt good. I grabbed some breakfast and watched some figure skating. It has helped me more emotionally then anything. I am not ready to jump on the ice yet...but inching closer.
I have not been around for a couple of days. And I can explain. On Thursday I underwent laparoscopy surgery for Endometriosis and since...I have been recovering.
Today has been a hard day...For the longest time I have had a hard time being honest with myself and on health issues. But it is even harder to be honest with people. Even if it is family, friends, doctors I just prefer to pretend I am okay so nobody would treat me differently. I mean if I have trouble being honest with myself I will definitely have trouble being honest with people. But by this, I am not helping my case either.
For example: On the ice I have to be 100% honest with coaches about how I feel. There are times I am not...especially last week when I over pushed and still feeling it over a week later. However it is getting better.
Today I was trying a high paced sprint type movements as a test to see how my body reacted. Basically jumps and spins on the ice. Not only can I not feel 90% of my body...except my head that was hurting earlier...it felt like my legs weighed 1000 pounds each. They did not want to move. I could not feel where the pressure on my skates were either.
I was jumping and in the middle of the session I had to ask my coach to stop. It was not going anywhere and I felt like if I kept pushing I would end up hurting myself...and I have already had enough injuries to last me a lifetime.
Now I am usually okay with answering questions on my health but I find it really uncomfortable to do so, especially when doctors are still trying to figure out what the hell I am going through.
But one question I was asked earlier was about the electro machine I normally use to control the Fibro. I always use it when I am in pain. Truth be told. I was at the doctor a few weeks ago with extremely sore breasts. My doctor sent me for a breast ultrasound and the week leading up to it I was an emotional wreck. I thought something had gone wrong and the pain started when I was using the machine **though I only used it on my legs**. Ultrasound showed nothing (good news) but still has me worrying for the future. But after the week I have had I may need to rethink on using it again.
Another uncomfortable moment was admitting my eating disorder to someone. I have kept it quiet for years and I know I need help but this is something I really hate talking to people about. Even now. But when the time is right I will talk about it.
Sleep has been decent by the way. Especially after last week. I have been sleeping about 8 hours a night. Averaging 2-3 times getting up to pee in those eight hours. But the bad thing is they are between 1am-9am. To get a good nights sleep it is recommended to be in bed by 10 (with no electronics around) and to sleep about 10 hours. Between 2-4 am is when the deep sleep happens and when you wake up you should feel more refreshed then if you went to bed later on or slept with electronics.
Today was on ice hell. I have never been in so much pain. Mentally AND Physically. It started out waking up when my body HURT. I debated all weekend if I was going to cancel todays session or not. Finally, it was to late to cancel and I had to put my skates on.
On the ice I immediately knew I should have cancelled. I curled over, and my coach came on and it was time to start.
First up was 3-turns. It felt like my body was disconnected. I cannot even describe what I was feeling. But it was making me mentally frustrated. I wanted to punch out the boards and kick them. I wanted to cry. The ice was also shit and I kept tripping in holes. Literally I would have looked like a psycho but punching the wall would have felt good but I held off.
From there after holding off, we went to spins. I felt almost normal but my lower and upper body felt disconnected. I felt disoriented and weak. I know there is a possibility I will have a NEW diagnosis soon....but every difficult session is getting me one step closer to realizing this diagnosis is bound to happen. I don't want to say anything yet BUT after this session and the one on Thursday I feel like I have 0 confidence left.
As well I did a few jumps but the pain made me want to fall over. The 45 mins could not end fast enough. I cannot wait for a good day so I can get on and boost my confidence.
These past few days I have been having major issues with sleep. It started when I woke up on Thursday morning at 7 am groggy as hell but I thought it had something to do with Fibro. What I did not expect was that I would be pulling an all nighter because of insomnia that night. I did try and sleep and maybe slept a full hour of that night...but definitely was not enough.
The next morning I seemed okay but it hit me towards afternoon. By evening I was exhausted but I was on the ice coaching a number for my clubs show. After that I got home and did not go to sleep right away. Which was my first big mistake. I tried to sleep come 10pm...but at 11:30 I was still wide awake. Finally around 12:15 I fell asleep and woke up shortly later needing to pee. When I got back to bed after I thought I was going to have more trouble but surprisingly I fell asleep right away allowing myself 7 hours in two nights.
Now I love sleeping but lately I have been having major issues. My back locks up when I sleep causing major pain, enough to wake me up. It locks up so bad I have to roll over in bed until my feet touch the floor before I can painfully straighten up. It feels like the right side of my back is paralyzed until I am able to straighten it.
It happened a couple of times in the past few months. But this week it has now been three times in a row. Thursday night, I was awake and it kept doing it. Friday and Saturday it has done it as well. I am looking what it could be but have found no answers, so I will wait and see what a doctor can say during one of my next appointments.
Since it is taking a while to get the site up and running, I will post my last three entries in one. these entries are after I was following a new workout to try and maintain Fibromyalgia and not cause flare-ups.
So I spent three days on the ice (15-45 minutes per day...I will explain why soon), supervised by coaches.
Day 1: I was well rested to begin. I asked my coach to push me as hard as I can until I vetoed it. Basically to get my heart racing and until I felt like I would pass out. It went well, after 15 minutes I was starting to feel the burn. My legs were going numb, I was exhausted and I mean even my shoulders were killing me. But I lasted for another five minutes of intense, which totaled to twenty minutes all together. Not bad for a first shot. Most stories I read when it comes to fibro and working out, it causes a lot of issues as most people have trouble just to do daily things around the house.
What came next was unexpected. I got off the ice a short while later. I was dizzy but nothing out of the ordinary. To be honest, I was feeling fine. Like I did years before I found out I had fibro. I continued on with my day feeling a bit numb in my joints but well overall.
Day 2: It was a little different on the ice. I was going to try pushing my limits again, but I knew I would head to a burnout for a few weeks after. Something in my body kept wanting me to push (I am very competitive with myself) but another part stopped me. I was glad it did. So instead I spent 45 minutes doing a 'medium workout' working on technical aspects on the ice. It went well but I was slightly disappointed in myself for not pushing my limits.
Day 3: Third day in a row. I don't even remember the last time I was on the ice for 3 days straight? Definitely before Fibro diagnosis...or even last year at this time? It was a rough summer so...I have no answer to this. This day was a little different. It was a new coach today, one who always pushes me, and normally I don't have too much trouble doing. But, for some reason....the minute I stepped on the ice I felt like I had steal legs. They felt heavy, I felt slow, I was exhausted and I just wanted to curl up in the corner of the ice and pray that the Zamboni would not kill me.
I managed to get through a good 20 minutes (15 if you count the mini break I took). But it was brutal. I don't even know how I managed. I got off the ice shortly later and I was kicking myself in the butt for having this happened. Then I remembered that this will happen time to time, and I have to find a way to control it even better.
--I will keep updating on my progress as time goes on. As well I will be getting back to the gym very soon even some off ice workouts. For more information on workouts you can do, you can head over to the exercising page!
A little of my background and an update of day 1. So, my name is Deidre Matthews. I am from Montreal. I recently turned 22 years old. For the past...7 years I have been suffering a lot of pain. Doctors took years before figuring it out and yet I am still going through appointments to make sure they are a hundred percent accurate. Thing is, with a lot of Chronic Illnesses, they are also classified as 'invisible'. The two I suffer from, Fibromyalgia and Endometriosis are invisible illnesses.
Fibromyalgia is characterized by widespread pain around the body. (To know more, see the Chronic Illness page above). This has been a recent diagnosis for me and all based on the symptoms. There is no cure for the disease, you could take medication but I have opted not to, and instead I am aiming to find ways that could help people live as much of a pain-free life as possible and medication free life. As I will be updating, I will also be the guinea pig, going through trial and error.
For Endo, I was diagnosed by 'mistake' through the symptoms I was having. To explain, I fell really hard on my stomach a couple of days before the pain started. But by then I forgot about the fall, I mean why would the pain start after 5 days? So I went through a year of excruciating pain, mostly getting worse during my period...seeing many doctors and specialists before doctors diagnosed me with a torn stomach muscle...and endometriosis. For Endo, I am currently on the waiting list for the surgery. I have had my pre-op (on March 17th, 2015) and currently waiting for the phone call so I can go into surgery. The surgery will be exploratory and they will remove whatever they can. But the doctor I had that signed me up for the surgery told me that even if he opens me up, he may not be able to see anything but that does not mean that it's not there. Endo can be placed on any organ and hidden from plain sight. So we will see what happens when the time comes.
For now I say good night. I will keep updating when I can!